On Friday the 17th of November we had a CDKL5 awareness morning in our school. CDKL5 is a rare X-linked genetic dosorder that results in early onset, and severe neuro-development impairment. It is an orphan disorder, however more children are being diagnosed as awareness of CDKL5 spreads. Most children affected by CDKL5 suffer from seizures that begin in the first few months of life. Most cannot walk, talk or feed themselves, and many are confined to wheelchairs, dependent on others for everything. Mnay also suffer with scoliosis, visual impairement, sensory issues and various gastrointestinal difficulties. For more information please visit www.cdkl5.ie

The children in Our Lady of Lourdes had a fun morning. They took part in face painting, bingo, bulb planting and penalty shoot outs. They had great fun and learned a lot about CDKL5.

Take a look at the photos here.....